For parents of infants with cystic fibrosis, the diagnosis marks the beginning of a journey and a new learning experience. To help you on this journey, parents of children with CF share their personal experiences about how they cared for their new baby during the first year.
The video series below includes perspectives from CF care team members and covers topics such as diagnosis, nutrition, airway clearance, and balancing daily life and CF care and support.
Preston W. Campbell, III, M.D. executive vice president for medical affairs of the Cystic Fibrosis Foundation gives a message of hope to families whose infants have been diagnosed with CF.
Ginny Drapeau, BSN, RN, CCRP, clinical research coordinator at Connecticut Children's Medical Center and manager of the Infant Care DVD project, talks about the purpose of this video.
Parents of children with CF talk about how they felt and what they did when they first learned their child had CF.
A respiratory therapist and parents of children with CF talk about managing lung health, and show the different techniques used for airway clearance.
A dietitian and parents of children with CF talk about proper nutrition, managing GI issues, and show how to give enzymes to infants with CF.
The information published on this website or in any connected material is the opinion of Lisa C. Greene dba Happy Heart Families only and is not meant to replace professional medical or mental health care. Persons should always seek the advice of a medical professional when making decisions about personal healthcare or treatment.
Contact: Happy Heart Families at: 10016 Edmonds Way, C#223, Edmonds, WA 98020 (425) 298-7197 or visit Contact Info to send an email.